Morningstar

National Organization for Rare Disorders Adds Seven Rare Disease Centers of Excellence Nationwide

NORD's growing network, now 46 institutions strong, represents a coordinated nationwide effort to strengthen rare disease care and research collaboration With these new members, the network now ...
Open Access GovernmentOpinion

Overcoming roadblocks for rare disease therapy development

Edward G. Neilan from NORD discusses critical efforts to speed up therapy development for rare diseases lacking treatments ...
Morningstar

Earn Your Stripes: NORD Launches Rare Disease Day® CME Challenge to Close Critical Gaps in Rare Disease Education

BOSTON and NORWELL, Mass., Feb. 23, 2026 /PRNewswire/ -- In recognition of Rare Disease Day, the National Organization for Rare Disorders (NORD®) today announced the launch of the Earn Your Stripes: ...
News Medical

NORD launches first-ever State Progress Report on rare disease treatment

Leading Advocacy Organization Drives Health Policy Improvements for 30 Million Americans with Rare Diseases through Rare Action™ Network With patient access to health care becoming increasingly ...
WFMZ-TV

NORD Advances Policy Leadership with Strategic Appointments to Strengthen Rare Disease Advocacy

PR Newswire WASHINGTON, March 25, 2026 WASHINGTON, March 25, 2026 /PRNewswire/ -- The National Organization for Rare Disorders (NORD ®) today announced the appointments of Michael J. Beard as Vice ...
NJBIZ

RWJUH named National Rare Disease Center of Excellence (updated)

Rutgers Cancer Institute, together with RWJBarnabas Health, is the state’s only Comprehensive Cancer Center, designated by the National Cancer Institute. The program emphasizes care and research ...
KXAN

NORD Breakthrough Summit Features Bold New Ideas for the Future of Rare Disease Care, Policy and Research

Lightning round poster presentations highlight cutting-edge insights on issues ranging from Medicaid coverage disparities to real-world data innovation WASHINGTON, Oct. 13, 2025 /PRNewswire/ -- The ...
Regulatory Affairs Professionals Society

Pharma industry wants clarity on plausible mechanism framework

The US pharmaceutical industry expressed support for the US Food and Drug Administration’s (FDA) proposed framework for ...
Hosted on MSN

Making rare disease care easier to understand

Rare disease care often involves complex terminology and fragmented education for patients, caregivers, and clinicians. Initiatives such as patient-centered panels, accessible glossaries, and ...
Hosted on MSN

How AI is reshaping rare disease diagnosis

A groundbreaking AI system, DeepRare, has outperformed rare disease specialists in accurately identifying complex conditions, offering hope for faster diagnoses. Rare diseases often take years to ...
MarketWatch

Earn Your Stripes: NORD Launches Rare Disease Day(R) CME Challenge to Close Critical Gaps in Rare Disease Education

The MarketWatch News Department was not involved in the creation of this content. Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis BOSTON and ...