Mother of boy with rare disorder known to affect only 200 people told he is ‘unlikely to survive past teens’

Frankie, now 10, was born in 2015 after Amy said she had a normal pregnancy and planned C-section, noting ‘no issues from birth’ ...

Mother of boy, 10, with rare genetic disorder known to affect 200 people told he is ‘unlikely to survive past his teens’

The mother of a boy with a rare genetic disorder, known to affect around 200 people worldwide, has said doctors told her “nothing can be done” and he is “unlikely to survive past his teens”.