Rett Syndrome Diagnosis and Disease Progression | AJMC
Rett Syndrome Diagnosis and Disease Progression | AJMC
Nov 29, 2022
ajmc.com
Join Drs Benbadis and Vega as they discuss the transition to adult care and comprehensive management of patients with Rett syndrome (RTT). The speakers will explore approaches to comprehensive care, offering guidance on how to effectively prepare pediatric patients with RTT for their eventual engagement with adult healthcare professionals and ongoing adult care. Faculty: Chuck Vega, MD Faculty: Selim Benbadis, MD Click the link to view the Activity and Disclosure details before participating: ht
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Families affected by Rett syndrome hope they will hear their child’s voice, know how they're feeling, and see them walk and play someday. Meet the Morell, Patterson and Martin families, who share their heartfelt stories in this video. Give today to advance research for life-changing treatments to help make their hopes a reality. www.rettsyndrome.org/donate | International Rett Syndrome Foundation
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If you know, you know… 3 signs your also an under-appreciated special needs mom- 1-You don’t get help - just “Wow, you’re so strong.” Translation: Please continue doing everything alone. 2-You catch the professionals’ mistakes. Because apparently YOU’RE the unpaid case manager, nurse, admin, and therapist. 3-When you finally ask for help… you apologize. Chronic independence isn’t a flex - it’s survival conditioning. If this hits, you’re not alone. | Rett syndrome
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