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Today, on Rare Disease Day, we are honored to share a glimpse of the Mullarkey family’s story. In 2025, they were featured in our second national Every Second Counts commercial. During the making of that commercial, Rebecca Alexander sat down with Samantha and Alec Mullarkey to talk about their young son Michael’s unexpected diagnosis with Usher syndrome. Their story underscores why every second truly counts for families living with Usher syndrome and the importance of bringing awareness and tre
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