HAE for me
HAE for me
Apr 11, 2022
haei.org
Living with #HereditaryAngioedema (HAE) means that attacks can be unpredictable. Learn more about the impact of HAE. | DiscoverHAE
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Living with #HereditaryAngioedema (HAE) means that attacks can be unpredictable. Learn more about the impact of HAE. | DiscoverHAE
3.1M viewsMar 24, 2023
FacebookDiscoverHAE
May 16th is hae day :-)! The HAEA invites YOU to TAKE ACTION FOR HAE throughout the entire month of May! Order a newly updated HAE ER Toolkit and receive a FREE limited edition TAKE ACTION FOR HAE t-shirt! Order yours today, and share it with your local first responders, medical emergency rooms, school nurses, dentist, family physician, coaches, and anyone you would like to learn more about HAE. Order your ER Toolkit here: https://fundraise.haea.org/2021-hae-day #haeday #HereditaryAngioedema #HA
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May 16th is hae day :-)! The HAEA invites YOU to TAKE ACTION FOR HAE throughout the entire month of May! Order a newly updated HAE ER Toolkit and receive a FREE limited edition TAKE ACTION FOR HAE t-shirt! Order yours today, and share it with your local first responders, medical emergency rooms, school nurses, dentist, family physician, coaches, and anyone you would like to learn more about HAE. Order your ER Toolkit here: https://fundraise.haea.org/2021-hae-day #haeday #HereditaryAngioedema #HA
2K viewsApr 15, 2021
FacebookHereditary Angioedema Association - HAEA
Join us at the HAEA Round Table, where members of our community discuss how they have dealt with the unique challenges of HAE. This event will feature people with HAE and will showcase their answers to questions related to their hopes and HAE. This event is sponsored by Biocryst. | Hereditary Angioedema Association - HAEA
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Join us at the HAEA Round Table, where members of our community discuss how they have dealt with the unique challenges of HAE. This event will feature people with HAE and will showcase their answers to questions related to their hopes and HAE. This event is sponsored by Biocryst. | Hereditary Angioedema Association - HAEA
2.1K viewsNov 6, 2023
FacebookHereditary Angioedema Association - HAEA
➡️🔴We invite you to watch the HAEA Treatment Education Webinar Brief: Living with HAE & Discovering Those Moments That Matter, featuring Merve Yilmaz, Associate Director, Ruconest Marketing, Melanie Powell, Senior Director of Patient Access and Support Services at Pharming, and Noah, HAE Patient Advocate. #HAE #HAEA #WebinarBrief #HereditaryAngioedema | Hereditary Angioedema Association - HAEA
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➡️🔴We invite you to watch the HAEA Treatment Education Webinar Brief: Living with HAE & Discovering Those Moments That Matter, featuring Merve Yilmaz, Associate Director, Ruconest Marketing, Melanie Powell, Senior Director of Patient Access and Support Services at Pharming, and Noah, HAE Patient Advocate. #HAE #HAEA #WebinarBrief #HereditaryAngioedema | Hereditary Angioedema Association - HAEA
140 viewsAug 15, 2024
FacebookHereditary Angioedema Association - HAEA
📣 Register NOW for the 2021 The Virtual Summit Series to watch the full on-demand session featuring Dr. Jennifer Hartstein as she discusses stress and HAE. This on-demand session will be available on May 16th! 👉 To receive your EXCLUSIVE event link for the 2021 US HAEA Virtual Summit Series events, register HERE: https://www.haea.org/autoforms/f/147 #HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit | Hereditary Angioedema Association - HAEA
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📣 Register NOW for the 2021 The Virtual Summit Series to watch the full on-demand session featuring Dr. Jennifer Hartstein as she discusses stress and HAE. This on-demand session will be available on May 16th! 👉 To receive your EXCLUSIVE event link for the 2021 US HAEA Virtual Summit Series events, register HERE: https://www.haea.org/autoforms/f/147 #HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit | Hereditary Angioedema Association - HAEA
5.1K viewsApr 7, 2021
FacebookHereditary Angioedema Association - HAEA
Hereditary angioedema (HAE) is a genetic #RareDisease that causes frequent and severe swelling of the skin, gastrointestinal (GI) tract, upper respiratory system, face and throat. Despite currently available treatments, attacks remain unpredictable and can be life-threatening. Together with HAE International - HAEi and the HAE community, Ionis is participating in the #active4HAE challenge in support of hae day, an annual observance on May 16 to raise awareness of HAE. From Carlsbad to Boston to
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Hereditary angioedema (HAE) is a genetic #RareDisease that causes frequent and severe swelling of the skin, gastrointestinal (GI) tract, upper respiratory system, face and throat. Despite currently available treatments, attacks remain unpredictable and can be life-threatening. Together with HAE International - HAEi and the HAE community, Ionis is participating in the #active4HAE challenge in support of hae day, an annual observance on May 16 to raise awareness of HAE. From Carlsbad to Boston to
103 viewsMay 2, 2024
FacebookIonis Pharmaceuticals
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🔴 🎙️ Listen to the HAE Speaks Podcast: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the safety and effectiveness of deucrictibant, an investigational once-daily oral treatment aimed at preventing HAE attacks. #HAE #HAEA #HereditaryAngioedema #HAESpeaks #Podcast | Hereditary Angioedema Association
3.9K views10 months ago
FacebookHereditary Angioedema Association - HAEA
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Hereditary Angioedema, or HAE, is a rare genetic condition that can cause sudden and unpredictable swelling in different parts of the body. For many people, symptoms affect daily life in ways that are often misunderstood or misdiagnosed. On The Balancing Act, Montel and Olga shared a conversation that brings greater awareness to what living with HAE can look like, why early understanding matters, and how education plays a critical role for individuals and families navigating the condition. If yo
80 views2 months ago
FacebookThe Balancing Act
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🎙In this month's episode of the HAE Speaks podcast, we shine a spotlight on some of the most passionate and dedicated advocates within the Hereditary Angioedema Association (HAEA) community – our regional leaders. These individuals play a crucial role in advancing our advocacy efforts, ensuring that every voice is heard and that access to care remains a top priority. Join us for this inspiring episode as we highlight the remarkable work of our regional leaders, Cedrick, Pamela, and Kate, and th
7.2K viewsAug 5, 2024
FacebookHereditary Angioedema Association - HAEA
33:54
🎙➡️Listen to the new HAE Speaks Podcast Episode! How to Ease Your Mind In this month’s episode of the HAE Speaks podcast, Ionis Patient Education Managers, Danielle and Kia, talk to a certified mindfulness meditation teacher, Anne, about practices and tips for meditation that you can incorporate into your daily routine. We hope this conversation will give you the knowledge and motivation to try it for yourself! 🔴 Listen to the episode now! #HAE #HAEA #HAESpeaks #Podcast #newpodcastepisode | He
1.5K views11 months ago
FacebookHereditary Angioedema Association - HAEA
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Join us at the HAEA Round Table, where members of our community discuss how they have dealt with the unique challenges of HAE. This event will feature people with HAE and will showcase their answers to questions related to Factor 12 and HAE. Thank you to this episode's sponsor: CSL Behring. | Hereditary Angioedema Association - HAEA
12K viewsJul 23, 2024
FacebookHereditary Angioedema Association - HAEA
HEREDITARY Angioedema; Living with the unpredictable. | Carri Levy
14.6K views2 months ago
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