Where else can you connect with 800 rare disease changemakers in one room? The NORD Breakthrough Summit brings together patient advocates, researchers, regulators, and industry leaders. It’s efficient. It’s collaborative. It’s driving progress. Join us: https://bit.ly/44Zcoqw | National Organization for Rare Disorders, Inc. (NORD)
Where else can you connect with 800 rare disease changemakers i…
171 views7 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
Be part of the inaugural NORD Rare Disease Scientific Symposium on June 2-3, 2025, in Washington, D.C! Visit NORDscience.org This new event will highlight breakthroughs in research, innovative trial designs, and the future of rare disease science. Don’t miss this opportunity to collaborate and innovate. Register here by April 30 for early bird pricing: https://bit.ly/4hV0X7A | National Organization for Rare Disorders, Inc. (NORD)
0:21
Be part of the inaugural NORD Rare Disease Scientific Symposium on …
309 viewsApr 3, 2025
FacebookNational Organization for Rare Disorders, Inc. (…
Two weeks remain to nominate your rare disease hero for a 2026 NORD Rare Impact Award, spotlighting individuals driving advocacy, research, policy, and patient support. Nominate by Friday, Feb. 13 at midnight: https://rareimpact.org/nominate-your-rare-hero/ | National Organization for Rare Disorders, Inc. (NORD)
0:16
Two weeks remain to nominate your rare disease hero for a 2026 NOR…
299 views3 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
Paroxysmal Nocturnal Hemoglobinuria - Symptoms, Causes, Treatment | NORD
Paroxysmal Nocturnal Hemoglobinuria - Symptoms, Cau…
11 months ago
rarediseases.org
Fabry Disease - Symptoms, Causes, Treatment | NORD
Fabry Disease - Symptoms, Causes, Treatment | NORD
Oct 29, 2024
rarediseases.org
Exciting news! Registration is now open for the 2nd Annual NORD Rare Disease Scientific Symposium, April 14-15 in Arlington, Va. Sign up now: https://nordscience.org/ Connect with researchers, clinicians, and rare disease innovators, and learn the latest on clinical trial design, new technologies, and FDA regulations. | National Organization for Rare Disorders, Inc. (NORD)
0:14
Exciting news! Registration is now open for the 2nd Annual NORD Ra…
208 views4 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
IgA Nephropathy - Symptoms, Causes, Treatment | NORD
IgA Nephropathy - Symptoms, Causes, Treatment | NORD
May 22, 2015
rarediseases.org
0:53
That’s a wrap on this year’s NORD Rare Diseases and Orphan Produc…
973 views6 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
0:19
The rare disease research community is stronger together. 💙 J…
133 views3 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
0:48
When the rare disease community comes together, amazing things h…
305 views8 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
0:27
NORD’s Rare Disease Centers of Excellence network just got bigge…
125 views5 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
0:10
Rare Disease Day is coming! ⏳💙 Show your stripes to show you ca…
391 views2 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
0:58
For rare disease professionals, Shelley’s story is a reminder that t…
1.2K views6 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
1:15
Did you know these 10 rare disease facts? Watch now and find more e…
2K viewsApr 12, 2025
FacebookNational Organization for Rare Disorders, Inc. (…
Rare Disease Advocates and Supporters Share the Importance …
Nov 16, 2022
rarediseases.org
2:30
Renowned immunologist Dr. David Fajgenbaum explains drug repurp…
162 viewsAug 12, 2024
FacebookNational Organization for Rare Disorders, Inc. (…
1:53
Today is NORD's 42nd Anniversary! On this day 42 years ago, a coaliti…
337 viewsMay 4, 2025
FacebookNational Organization for Rare Disorders, Inc. (…
Research Grant Program | NORD
Jan 10, 2023
rarediseases.org
Get Involved with the Rare Disease Community | NORD
May 19, 2015
rarediseases.org
National Organization for Rare Disorders | LinkedIn
Aug 1, 2022
linkedin.com
0:18
We saw how much you loved our Swifties Rare Warriors Unite posts…
861 views6 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
5:57
The creation of a natural history study is an important first step in t…
248 viewsAug 15, 2024
FacebookNational Organization for Rare Disorders, Inc. (…
0:09
🚨 We’ve hit 2,000 participants—but we’re not stopping there. We nee…
82.9K views9 months ago
FacebookNational Organization for Rare Disorders, Inc. (…
1:12:33
NORD Rare Disease Centers of Excellence Grand Rounds | Rare D…
48 views1 month ago
YouTubeNational Organization for Rare Disorders (NORD)
57:31
Understanding the FDA's Plausible Mechanism Framework
6 views2 weeks ago
YouTubeNational Organization for Rare Disorders (NORD)
0:05
What does it mean to have a rare disease? It might mean…. 🦓 It take…
318 views2 months ago
FacebookInternational Waldenstrom's Macroglobulinemi…
2:56
National Organization for Rare Disorders (NORD) | Breakthrough…
530 views3 months ago
Instagramnord_rare
1:04
Raising Awareness on National Rare Disease Day
2.3K views2 months ago
TikTokdr.tommymartin
4:33
The Drug Development Process
52.9K viewsFeb 11, 2021
YouTubeNational Organization for Rare Disorders (NORD)
1:46
What is a Registry?
6K viewsJun 2, 2020
YouTubeNational Organization for Rare Disorders (NORD)
See more videos
Static thumbnail place holder