Rare Disease Day 2026: Advancing Neurodegenerative Disease Research
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Tomorrow 29th February is Rare Disease Day 2024. Please join us in shining a light on everyone living with a rare disease. Share our video and help us raise awareness and create change. We support Rare Disease Day 2024, do you? #RareDiseaseDay #awareness #equity #understanding #support #change #shareyourrare #shareyourcolours | Action Duchenne
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Raising awareness on Rare Disease Day February 28th 2024 CTNNB1 Syndrome is a rare genetic disorder with approximately 430 known diagnoses around the world. Little Evie is one of them. CTNNB1 is the most common cause of misdiagnosed cerebral palsy. What is the CTNNB1 gene responsible for? The CTNNB1 gene provides instructions for making a protein called beta-catenin. This protein is present in many types of cells and tissues, where it is primarily found at junctions that connect neighboring cell
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#RareDiseaseDay is 100 days away, on February 29, an especially rare day! Rare Disease Day is a global awareness campaign elevating the voices and raising awareness of the 300 million individuals impacted by rare diseases across the world. This will be NORD's 15th year as the celebration's official US sponsor. Explore ways you can #ShowYourStripes as we prepare for this international celebration: https://bit.ly/3umz7OG EURORDIS-Rare Diseases Europe | National Organization for Rare Disorders, Inc
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