VHL UK/Ireland is asking for your help with a new research study by Cardiff University. The study is called “The impact of a predictive genetic diagnosis in childhood on psychosocial experiences of adults with von Hippel-Lindau Syndrome (VHL)”. The research aims to understand how finding out about a VHL genetic diagnosis during childhood or teenage years may have affected people’s thoughts, feelings, and social experiences later in life. The study is looking for adults (aged 18 or older) who wer
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