Alberta siblings with rare, terminal disease finally have hope for a treatment
3:58
Alberta siblings with rare, terminal disease finally have hope for a treatment
Aug 10, 2023
Global NewsDestiny Meilleur
Batten Disease
Batten Disease
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Understanding Batten - Beyond Batten Disease Foundation
Understanding Batten - Beyond Batten Disease Foundation
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#URMC's Dr. Erika Augustine became a pediatric neurologist to help individuals. She was drawn to research because each discovery moves scientists toward new therapies for large numbers of people facing devastating diseases. #3000researchers | UR Medicine
2:15
#URMC's Dr. Erika Augustine became a pediatric neurologist to help individuals. She was drawn to research because each discovery moves scientists toward new therapies for large numbers of people facing devastating diseases. #3000researchers | UR Medicine
93.9K viewsJun 7, 2016
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Family fighting for cure after daughter's batten disease diagnosis
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Family fighting for cure after daughter's batten disease diagnosis
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Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta siblings
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Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta siblings
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Global News
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What Is Batten Disease? 4-Year-Old Boy Receives New Drug For Neurological Disorder
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23:17
Ellery is diagnosed with a progressive and terminal disorder known as Batten disease. This deadly disease takes away a child’s ability to walk, talk, speak, and see. As of now Ellery is still able to say a few words like “Mickey” and “Twinkle” but her parents know this will not last forever. Ellery’s mom wants the world to know that they try to focus on the joy but Batten disease is forever destroying a part of their family. | Special Books by Special Kids
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FacebookSpecial Books by Special Kids
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3 children with rare, fatal disease access treatment to prolong their lives
Aug 9, 2023
Global News
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Isaac Fighting Batten Disease | Neither one of us could cope facing this battle alone or without the most amazing people supporting us. Thank you so much to everyone... | Instagram
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