Rare Voices, Shared Journeys is a special episode where truths, triumphs, and challenges of people living with rare diseases. Each story amplifies voices too often left unheard—patients, caregivers, and advocates - bringing their lived experiences into the heart of global conversations on health equity. Together, we explore what equity truly means for rare disease communities - and how we can build a world where every voice matters and every journey is valued. Streaming live this February 28, 20
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Rare Voices, Shared Journeys is a special episode where truths, triu…
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Watch NOW ⏰ The official video for #RareDiseaseDay 2022! Available with subtitles in 46 different languages here: https://cutt.ly/bOlW0b1 | Rare Disease Day
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Rare Disease Day Support Video: PBC Awareness | PBC Awareness, NFP
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🦓 RARE IS POWERFUL. 🦓 Today is #RareDiseaseDay, and we’re shining a light on the strength, resilience, and beauty of our rare disease community. 🔬 Research is the key to unlocking new treatments for PWS and all rare diseases. And today, every donation is MATCHED! https://impact.fpwr.org/campaign/659000/donate #RareDiseaseDay #ShowYourStripes #PWS #SYS #FPWR | The Foundation for Prader-Willi Research
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🦓 RARE IS POWERFUL. 🦓 Today is #RareDiseaseDay, and we’re shini…
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Behind every rare disease is an unique individual with dreams, talents, and limitless potential. This heartfelt video introduces inspiring individuals who are more than their diagnosis—they are smart, capable, talented and dare to dream. Let’s see the person first, before their condition. They are more than what meets the eye. This video is brought to you by Program JARANG, a Rare Disease Advocacy CSR program by Pharm-D Health Science. Learn more about JARANG here: www.jarang.pharmdhs.com Rare D
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Me at diagnosis "I don't think RA will be too hard" Me 20 years later "Nothing could possibly be harder" The struggle is immense. So we laugh at how ridiculously hard it is. And we get to work. #rareversal #ra #rheumatoidarthritis | Paddison Program for Rheumatoid Arthritis
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Family pushes for awareness, funding on ‘Rare Disease Day’
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