This is Lily’s story ❤️ Go to @rettuk or ‘Reverse Rett’ to find out more about this rare genetic neurological and developmental disorder known as Rett syndrome. #EFLintheCommunity | @leytonorientfc | EFL
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October is also Rett Syndrome Awareness Month 💜 Today’s story is about a very special girl — Arina Morozova, who has been walking her own extraordinary path for 12 years. A path of daily strength, therapy, and small but meaningful victories💪 Arina lives with Rett syndrome — a rare genetic neurological disorder 🧬 that almost exclusively affects girls. It causes severe developmental and motor challenges after an early period of seemingly normal growth. Children with #RettSyndrome often lose the
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October is also Rett Syndrome Awareness Month 💜 Today’s story i…
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Documentary 'Magnolia's Hope' shows family's struggle with Rett syndrome
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Documentary 'Magnolia's Hope' shows family's struggle with Rett …
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TODAY.comJenny Tesler
What is Rett Syndrome? If you have been following our story for a while, you know Rett Syndrome is part of our daily life. For many, though, the name itself is unfamiliar, something that sounds rare, complicated, maybe even distant. But for us, it’s not distant at all. It’s here every morning when we wake up, every therapy appointment we drive to, every celebration we have when the tiniest milestones are reached. For the month of October I am going to discuss our family’s journey with Rett, but
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One Family’s Journey with Rett Syndrome - Child Neurology Foundation
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