Rett Syndrome Symptoms, Causes, and When to Seek Help
Rett Syndrome Symptoms, Causes, and When to Seek Help
Mar 17, 2021
autism360.com
When I think back to the fear I felt hearing a doctor say my baby would never communicate with us… The thought that I brought this precious child into the world without a way to express or enjoy life — it was torture. If I could talk to that new mom now, I’d tell her: She will live. She will be remarkable. And so will you. #S#SpecialNeedsParentingR#RettSyndromeAwarenessM#MomLifeF#FaithOverFearM#MiracleBabyD#DisabilityIsNotInabilityP#ProudMomP#ParentingJourneyS#StrongerThanIDreamedFromFearToFaith
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When I think back to the fear I felt hearing a doctor say my baby wou…
13.2K viewsApr 24, 2025
TikTokvalentina_rett_syndrome
Rett Syndrome Diagnosis and Disease Progression | AJMC
Rett Syndrome Diagnosis and Disease Progression | AJMC
Nov 29, 2022
ajmc.com
Rett Syndrome lately seems like a lot of visits to doctors! 🩺School and other programs apparently have a lot of required paperwork, so I had to skip school today to have a neuropsychological evaluation.🧐🧐🧐These are really difficult with Rett Syndrome and not being able to talk or signal my answers, so I’m bringing my Tobii eye gaze computer to help me communicate. It is supposed to take a really long time, so wish me luck!🍀 #eyegaze @tobii_dynavox #neuropsychology #neuropsych #rett #rettsyn
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Rett Syndrome lately seems like a lot of visits to doctors! 🩺School an…
539 views6 months ago
Facebookvioletroams
Got questions about gene therapy? We’ve got answers! Watch this short, fun and informative video on the upcoming clinical trial. Enjoy and share! #MakingRettHistory | Rett Syndrome Research Trust
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Got questions about gene therapy? We’ve got answers! Watch this sh…
168K viewsMar 12, 2019
FacebookRett Syndrome Research Trust
Here is another clip from Monica's episode on RareCast Podcast. It's so inspiring to just sit back and recognize what you, the Rett community, have been able to accomplish with grassroots fundraising for RSRT's research initiatives. Without your tenacity and dedication, cures would NOT be on the horizon. Now, more than ever, we need to keep that momentum going to get us to the finish line. | Rett Syndrome Research Trust
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Here is another clip from Monica's episode on RareCast Podcast. It's …
577 viewsOct 24, 2024
FacebookRett Syndrome Research Trust
If you know, you know… 3 signs your also an under-appreciated special needs mom- 1-You don’t get help - just “Wow, you’re so strong.” Translation: Please continue doing everything alone. 2-You catch the professionals’ mistakes. Because apparently YOU’RE the unpaid case manager, nurse, admin, and therapist. 3-When you finally ask for help… you apologize. Chronic independence isn’t a flex - it’s survival conditioning. If this hits, you’re not alone. | Rett syndrome
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If you know, you know… 3 signs your also an under-appreciated sp…
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